I am looking for mothers to miracle babies (and kids too!), READ: Babies who are ‘special’ than other normal babies, i.e. born with congenital defect, chronic disease, disorders, autism, down syndrome, premature, etc – so sorry I dunno the terms used. This is not only for myself, but for my baby and for all babies and mommies out there who are in the same boat.
I am creating a new category in MSK Forum, special for us (mommies with ‘special’ children’) – pls register and do inform me so that I grant the access into the private room, to share anything that we can’t share with the public. Something about our deep feeling that only us can understand.
Do you have a special baby? Or siblings? Or your niece or nephew? Or your friends? Or your friends’ children? Or yourself?
Please let me know k 
You might think this is nothing to be exaggerated, but out there might be one of us still feeling lonely, isolated, alone, different… Where not everyone understand our worries…
Let’s support each other.
All children deserve the same opportunity to have great life and great future.
Let’s tell the world that our children are not abnormal, they’re MIRACLES!
*For those who don’t know, my Fahry was born prematurely at 28th week of pregnancy and having Amniotic Band Syndrome (ABS).
**Please spread this and let me know if you’re one, OK? Email me at mommy[at]fahry[dot]net.
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{ 29 comments… read them below or add one }
hmm.. menariknya..
erm.. ini lah posting miracle babies ya! (pagi tadi nampak tajuk ni di blog list i, tp bila klik, x da pula posting ni.. haha)
anyway, nanti kita send email gambar alia ya!
hahahah… leh jadi model kat header nun! 
ahah, dah dapat gamba alia tu. insyaAllah kalo takde aral by this week or next week adala header baru
caner nk hantar gambar baby kat lyna?
cousin akak ada penyakit jantung blubang….
tp kan, dia nie bionik tau.. sbb ape? sbb dia pakai jantung bateri.. huhu… electronik habis…
teringat kisah bio-nik semalam hehehe
bole la share2 pasal cite dia nanti eh?
ada satu link untuk mommy lyna singgah. dia juga ada baby yg sangat istimewa. cuba link ni http://itafed.blogspot.com/
TQ ain
dah pegi tp xtinggal mesej lg kat ita tu
TQ yer!
Ni kiro supo register kat JKM ko gano nih?
takdopla.. sbb pernah terserempak dgn srg ibu lagu ni, dio kato dio berasa low self esteem, lonely… sbb anak dio. shuldnt be kn?
mybe kalo kita kumpul ramai2 bleh tulung ibu2 yg gini.
gitu kisahnya..
Auntie Lina, don’t forget to include Syafiah ye Auntie…. Syafiah nak tanya le, normal tu apa auntie? Bagi ibu, Syafiah ni normal je pada dia… entah la…
ntahla. auntie pon tatau nk describe cemana Syafiah.. ibu Syafiah tau le tu
i agree with you lyna…my son born 29 weeks..we’re lucky mummy with miracle baby
indeed! jom jom kita sama2 bersatu! derang mmg survivor kn!
u r rite….my little prince muhammad afiq danial is a survivor…hope ur little fahry pun sama….kita doakan sume ibu-ibu yang ada anak special nie tabah dan redha
hai..salam semua. thanx sebab ada kan ‘ruangan’ utk ibu-ibu yang ‘terpilih’ nih…saya ita. ada anak istimewa, sarra. memang bukan senang nak hadapi dugaan yang dah ditetapkan Allah. but once kita redha..insyaAllah, segalanya jadi mudah. love to say that, ita sudi berkongsi masalah dgn semua ibu-ibu yang senasib..ita jugak ada kawan blogger yang lanih dah makin close each other sebabkan anak kami hampir sama perjalanan hidupnya…nih link die. http://yongnoina.blogspot.com/
salam Ita
itula tengok gamba Sarra dgn Nabila.. actualy dah penah jumpa Nabila masa birthday Ian tuhari.
nanti2 kita bole buat gathering pula ya
salam mommy Lyna
kakyong ade kwn yg anaknyer autism.. la ni dah usia 10 tahun kot.. dah lama tak jumpa, tp umi dia ckp dia lagi terer ckp BI dr BM..
kak tu nama Salwani, tp dia tak pernah tulis pasal autism @ anak dia dlm blog.. tp kalo nak tips pasal anak2, she is my best reference.. boleh le tinggalkan jejak kat blog kak wani http://pabiyen.blogspot.com
salam kakyong
thanks for the info!
nanti saya akan hubungi kak wani
semoga dapat kongsi pengalaman…
lina, saya pun ada sorang kawan yang ada miracle baby ni…
http://zaidan-jue.blogspot.com/
baby dia comel.. hehehe
TQ sya!
dah pegi tengok babyBalqis.. mmg comel!
salam..emm..ramainya kat sini..nak join sekali la..!
salam lyna..emm..ramainya kat sini..nak join sekali la..!
salam ina, jom2 kita beramai2 mai
salam semua
alhamdulillah, TQ for your support. terharu saya.
registerlah kat forum http://mysuperkids.net/forum & nanti bagi saya username, saya akan grant access utk private area utk ‘special’ mothers ni.. (semua mak special. sorila xtau nk pakai term apa). forum private tu, orang lain xleh nampak. hanya yg dpt access je.
so, ape lagi!
Salam Siti Lina..
saya ada anak ADHD, skrg umo 4 thn..
dah ada ID untuk forum MSK, tp macam mana nak masuk private room tu..
salam Along….akak ni dah hampir 10 thn ‘dekat’ dengan anak bos yang bisu dan pekak tetapi sangat cantik…(Along sendiri dah tengok gambar kan)…
Akak ‘urus’ dia dari umur 4 thn sampai dia dah 12 thn…i love n miss her so much…maklum dia di miri, akak di bintulu…
Her mum….selalu cakap kpd semua yg ada anak istimewa….jangan sedih… “kita ibu yang Grade A”….tdk semua org berpengalaman melalui nya dan mendepani kerenah anak2 istimewa…
Along, staff hubby akak, 2 drpd 5 org anak dia, terencat akak….tp fizikal dan muka nampak normal….kalau tgk macam tu je…tak tau mereka tu terencat akal…respect kat kakak tu, dia suka bawa anak dia jumpa orang tanpa rasa malu….
saya ada seorang kawan… anak dia nie ada hearing loss sebab meningitis.. masa tu dia kene demam panas
umur dalam 2 tahun 7 bulan… sekarang nie masih blum dapat bercakap..
saya kesian kat dia…. can she join this group?
can can! please please join the grup.
salam
saya ader adik yg dikategorikan dlm ‘miracle’ni. maser kecik xder la nmpk dier punyer kelainan bler di compare dgn kanak2 lain.bler dh masuk primary school, dier punya development amat la slow.
when she 7 yrs old, she acts like 4yrs old kids. she can memorize every single words but she do not recognize the ABC. dier jugak dlm kategory hyperactive sampai la dier kna consult dgn pead utk solve her prob. development dier jugak jauh ketinggalan.
After 4yrs treatment, i can see the improvement which is she can read and recognize ABC yet she still behave like kids not at her age.
Aper yg merisau kan saya sebagai kakak, boleh kah dier menjalani kehidupan di zaman serba canggih.