Amniotic Band Syndrome

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OK now i have time to find it out…


this is what happened to Fahry

Amniotic band syndrome is a rare condition caused by strands of the amniotic sac that separate and entangle digits, limbs, or other parts of the fetus. This constriction can cause a variety of problems depending on where strands are located and how tightly they are wrapped.

It is believed that amniotic band syndrome occurs when the inner membrane (amnion) ruptures, or tears, without injury to the outer membrane (chorion). The developing fetus is still floating in fluid but is then exposed to the floating tissue (bands) from the ruptured amnion. This floating tissue can become entangled around the fetus.

The cause of amnion tearing is uncertain and is consider a chance event. It does not appear to be genetic or hereditary, so the likelihood of it occurring in another pregnancy is remote.
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what shown in the picture above is exactly what happened to Fahry. but with the other hand and foot also affected.

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It is itself part of the pregnancy, formed early on from cells descended from the original fertilized egg.
[SOURCE: CMH]

kesiannya Fahry.. dalam perut Mami lagi dah rasa sakit. takpe..takpe… so skarang Fahry mesti dah imune dengan rasa sakit-sakit kan πŸ™‚ kuatnya Fahry ni! nanti bole la Mami buli kasi dera-dera sikit πŸ˜€ (adakah ini satu ‘penghibur hati’?).

tapi rasa macam best pulak kan. RARE CONDITION –> bukan senang nak dapat ni. 1 in 10,000 live birth. kira kita dah masuk dalam statistik tu lah. huhuhu.

agaknya sebab tu Fahry nak kuar cepat-cepat, tak tahan dah kene jerut kat dalam tu kan. tapi Mami tengok memang kat jari-jari Fahry macam ada ‘benang’. doktor try nak cabut but ia macam melekat je kat situ. could be itula dia band-nya kan?

syukur alhamdulillah ia cuma menjerut kaki-kaki & tangan-tangan Fahry je… kalau kena muka kan dah tak hensem… kalau kena cord ke leher ke…., oh tak sanggup Mami think about it.

more on amniotic band syndrome : with pictures.

so it’s not because of:

– lack of nutrition.
– breastfeeding.
– prematurity makes the limbs couldn’t develop (in fact IT IS THERE (the limbs) since 3-4 month of pregnancy).
– genetic (nobody in our family has it).
– kenan
– etc.

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6 responses to “Amniotic Band Syndrome”

  1. Mommy Lyna Avatar
    Mommy Lyna

    thanks for the info…

    hmmmpphh..nak kata apa lagi org2 yg berkata2 itu ek?

    abaikan ajer…
    mrs noba | 12.15.08 – 11:06 am | #

    oh macam tu kisahnya.
    kv | 12.15.08 – 11:13 am | #

    mekasih share pengalaman berharga ni. untuk kami2 kat luar sini pinjam kekuatan.

    personally untuk akak, takde apa lagi yang perlu dikeluhkan tentang hidup akak bila tau ada orang yang lagi besar challengenya.

    my salutation to you lina!
    kaknon | 12.15.08 – 11:19 am | #

    Gravatar now

    im in the know

    we all

    now

    in the know

    p/s::sekarang usah buat andaian merepek,seperti memegang parang ketika mengandung..absurd sangat bunyinye

    grow grow grow fahry!
    anasfadilah | Homepage | 12.15.08 – 11:38 am | #

    Gravatar tq for sharing the information..
    suhainini | 12.15.08 – 11:40 am | #

    Gravatar wahh.. pepagi dah baca term medical.. ye kan Lina, ada hikmahnya juga Fahry kuar cepat..
    cik_yan | Homepage | 12.15.08 – 11:41 am | #

    Gravatar ooh…gitu..benda baru.at least, ada sbb musabab yg rational dari kepercayaan yg karut2. Lina! tak puas hati la i..masih x leh2 tgk gmbr Fahry/ flickr.
    sal | 12.15.08 – 11:41 am | #

    Gravatar oh new knowledge today.
    Takpe lah bagitu, yg penting fahry sihat. Dan walau apapun reason, mmg ia janji Tuhan utk fahry, mommy abiy and the rest of the family..

    Cepat besar yea fahry!..
    mirah | Homepage | 12.15.08 – 11:42 am | #

    Gravatar Owh Fahry tabahkan hatimu…memang fahry sangat kuat! Thanx for sharing the info=D
    Sufira | Homepage | 12.15.08 – 12:09 pm | #

    Gravatar lyna, thank u very much for sharing the info. yg psl org ckp2 tuh, mmg kita takkan buleh tutup mulut org kan? sakit telinga (& hati)…apa2 hal pun now we know the root cause of it, basically its not becoz of u.
    suryati | Homepage | 12.15.08 – 12:27 pm | #

    Gravatar Lina,…

    akak nak beli susu/tea/ubat utk anak sedara yang nak menyusu babynya sekarang. Dah try tanya PNUT… entah dia sibuk atau tidak.

    Hopefully ada yang boleh tolong…. dapatkan ubat utk banyakkan susu tu… nanti akak bayar… ada member yang rajin tolong dak ???
    izawani | Homepage | 12.15.08 – 12:33 pm | #

    Gravatar hah…tuh la orang-orang nih…suke kata yang bukan-bukan…baca taknak….anyway, you go fahry!! semoga membesar dengan jayanya…

    ps: dh berapa berat fahry skang? lama tak update…..
    mamayan | 12.15.08 – 12:39 pm | #

    Gravatar Auntie Kat sayang fahry. Auntie Kat sayang Hafiy.
    Muka Fahry sama ngan Hafiy~ πŸ˜€
    Pray for their health and happiness always…
    Auntie Kat | 12.15.08 – 1:02 pm | #

    Gravatar ada orang fikir yg bukan2 ke penyebab kaki Baby Fahry tu? ayoyo..
    but i salute you Mamy Hafiy and Fahry, you are such a strong lady. i love reding about how you are so positive about everything and so independent.
    take care! lotsa love and prayers from me to you and fahry.
    again congratulation mom of 2! hehe
    Diyana | Homepage | 12.15.08 – 1:04 pm | #

    Gravatar ini first time saya dgr pasal amniotic band ni.. sungguh besar kuasa Allah kan.. banyak-banyak bersabar ye mami hafiy & fahry.. Allah sayang banyak banyak banyak banyak sama fahry tau.. jadi anak yg soleh.. jaga mami.. abang hafiy dan abiy ye… mami hafiy & fahry… be strong.. this is a blessing in disguise..
    little mama | Homepage | 12.15.08 – 1:45 pm | #

    Gravatar tahniah!

    rasanya tak terlambat untuk ummi ucapkan tahniah kepada lina

    fahry, buat ummi teringat novel Ayat-ayat cinta

    comel

    apapun dugaan yang Allah berikan, terimalah ianya dengan sabar

    kerana Allah tahu apa yang terbaik untuk kita
    ummibatrisya | 12.15.08 – 2:14 pm | #

    Gravatar you’re such a strong person. fahry is very lucky to have a mother like you. anyway i pray that fahry will grow up well and healthy, insyaAllah. take care (and i so love his name )
    hetz | Homepage | 12.15.08 – 2:25 pm | #

    Gravatar thank for the info and thank you for giving us one great personality.. and what mothers are
    ibu Emir | Homepage | 12.15.08 – 3:22 pm | #

    Gravatar Syukur..bila dengar perkembangan fahry..Along ur so strong..hope Fahry akan cepat sembuh dan leh balik umah jumpa abang hafiy..Doa kami utk kalian semua..
    UmmiRizqeen | 12.15.08 – 3:42 pm | #

    Gravatar fahry
    sorry
    sebab sms suruh fahry dok lagi dalam perut
    sakit ya sayang

    alahai ampun..ok2 sekarang dah faham napa fahry berusaha juga nak keluar siap keluar sendiri tu!
    cayalah fahry!
    Fid | Homepage | 12.15.08 – 3:57 pm | #

    Gravatar lyna,thanks sharing the info.first time jugak tahu benda2 nih.btw,you are not alone.
    Fahry,can’t wait to see you more and more and many more…
    reet | 12.15.08 – 4:09 pm | #

    Gravatar InsyaAllah Fahry akan semakin kuat…Lina kalau nak susu banyak cuba amalkan makan biji halba dalam secubit setiap hari…Kebanyakan kawan nonie amalkan makan biji halba ni…
    Nonie | Homepage | 12.15.08 – 4:56 pm | #

    Gravatar oh baru akak pun faham..ye lah benda ni terjadi masa dalam perut lagi..jd kita sbg manusia yg lemah ni mmg tak tahu mcm mana nk elak pasal kita x nmpk…

    Allah beri keistimewaan ni utk kita belajar dan umpama 1 pengorbanan yg mulia dr seorang Fahry demi mencerahkan dada org lain dgn pengetahuan yg baru..
    kakLuna | Homepage | 12.15.08 – 5:15 pm | #

    Gravatar ho… baru laaaa akak tau….
    mama emma | Homepage | 12.15.08 – 5:31 pm | #

    Gravatar sian fahry… kes cmnie masa scanning doc x leh detect ek? huhu…x smpai ati bila pk kesakitan dia dr dlm perut lg..huhu..sian si comel…harap2 sumer akn lebih baik..
    p-na mama oja | Homepage | 12.15.08 – 5:43 pm | #

    Gravatar Kuatkan semangat yer..to fahry cepat2 besar ye sayang
    Neroecha | Homepage | 12.15.08 – 7:07 pm | #

    Gravatar yg penting baby sihat dan selamat..alhmdulillah.. mujur dpt detect awal..

    org tua2 slalu ckp, budak premature mmg cerdik.. yeah.. dah nmpk early sign kan, along..fahri mmg budak bijak..insyaAllah..

    auntie aliaa doakan fahri jd budak bijak.kalau boleh bijak cam stephen hawkings , reveal big bang theory. dan moga b=fahri jd org yg kuat imannya. wpun fahri kurang dr segi fizikal, tp iman teguh & bertaqwa. ameen..

    along pun take care.. jg mkn minum, kesihatan. have sufficient rest, coz u hv to b energetic to have extra care of your baby. take care along..

    Allah sayang kita semua
    ummu fateh | 12.16.08 – 9:08 am | #

    Gravatar Mama sendiri sayang sejuta kali… kami sayang fahry seribu kali…
    izawani | 12.16.08 – 11:38 am | #

    Gravatar Kalau diikutkan akak pun tak pernah dengar benda ni…tapi tuhla..itu semua kekuasaan ya maha esa…tak per la Fahry…sikit je tuh kaki tu nak…Fahry kan kuat…momy Fahry pompuan tapi dia kuat..ini plak Fahry lelaki…mesti triple kuat dari momy kan Fahry kan…sikit je kaki tu…kan sayang Fahry kan…auntie sentiasa ada untuk beri support tuk Fahry…ok….semoga cepat besar ye nak…
    mAmA aQiLaH @ puteri_satu | Homepage | 12.16.08 – 11:58 am | #

    Gravatar mommy lina,
    i’m ur silent reader in this blog….sangat teruja dan terharu dengan semangat mommy lina dalam menghadapi semua ini…insya allah akan dipermudahkan semuanya…
    ina | 12.16.08 – 12:11 pm | #

    Gravatar Oh mcmtu ya amniontic band tu.. ilmu baru ni..Apapun Lina n Fahry kena kuat n tabah hadapi semua ujian ni..
    Ingatlah Allah sentiasa bersama org2 yg sabar..
    Norlida | 12.16.08 – 1:12 pm | #

    Gravatar Along baru baca kes ko..Sebak sgt baca ko punye story.. Teringat mase Suhaib kene tahan wad 2 hari lepas bersalin. Tu kene tahan 2 hari je, minor complication, pun dah rasa sgt getir. Mase dok kat wad sedih sgt tgk mommies yg kne sacrifice tunggu baby berminggu-minggu, berbulan-bulan..Ko mmg very strong, salute sgt..
    Anonymous | 12.16.08 – 2:44 pm | #

    Gravatar
    U ni kan…sempat lagi buat lawak..kalau terjerut kat muka..kan dah tak handsome..hahah!

    Tapi betulla..nasib la tak effect kat bahagian2 yang yang boleh ngancam nyawa..
    ma_danish | Homepage | 12.17.08 – 8:57 am | #

    1. Mommy Lyna Avatar
      Mommy Lyna

      ya ya yayy

  2. […] Amniotic band disebabkan oleh lapisan sebelah dalam uterus yang terkoyak dan menjadi tali-tali yang membelit anggota badan janin dalam kandungan. Dari teori, dikatakan benda ni berlaku sejak dari sel lagi. Dari pengalaman, memang kami tak tahu bila ia berlaku sebab bila Fahry lahir baru kami tahu. Memang jelas nampak di anggota Fahry, especially di tangannya, masih ada lagi ‘benangΒ²’ tuh. […]

  3. siti muhaimin Avatar

    saya baru jer follow blog ni, sarat dengan informative, thank you for sharing. semoga mommy lyna & fahry tabah menghadapi hari2 mendatang. plese do not stop updating us with fahry story πŸ™‚

  4. zairul Avatar

    Anak yang istimewa….siapa tahu bila besar dia anak paling berguna…!!

  5. Aimi Shaklee Avatar

    moga fahry membesar menjadi mujahid kebanggaan keluarga πŸ™‚ membesar bagaikan juara !!

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